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UBC Dataverse Translation missing: fr.blacklight.search.logo
Borealis
Murthy, Srinvivas; Kinshella, Maggie Woo; Trawin, Jessica; Johnson, Teresa; Kissoon, Niranjan; Wiens, Matthew; Ogilvie, Gina; Dhugga, Gurm; Ansermino, J Mark 2023-04-18 <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab." <strong>Objective(s):</strong> Momentum for open access to research is growing. Funding agencies and publishers are increasingly requiring researchers make their data and research outputs open and publicly available. However, clinical researchers struggle to find real-world examples of Open Data sharing. <br /> <br />The aim of this 1 hr virtual workshop is to provide real-world examples of Open Data sharing for both qualitative and quantitative data. <br /> <br />Specifically, participants will learn:<br /> 1. Primary challenges and successes when sharing quantitative and qualitative clinical research data. <br /> <br />2. Platforms available for open data sharing.<br /> <br />3. Ways to troubleshoot data sharing and publish from open data.<br /> <br />Workshop Agenda:<br /> <br />1. “Data sharing during the COVID-19 pandemic” - Speaker: Srinivas Murthy, Clinical Associate Professor, Department of Pediatrics, Faculty of Medicine, University of British Columbia. Investigator, BC Children's Hospital <br /> <br />2. “Our experience with Open Data for the 'Integrating a neonatal healthcare package for Malawi' project.” - Speaker: Maggie Woo Kinshella, Global Health Research Coordinator, Department of Obstetrics and Gynaecology, BC Children’s and Women’s Hospital and University of British Columbia <br /> <br />This workshop draws on work supported by the Digital Research Alliance of Canada.<br /> <br /><strong>Data Description:</strong> Presentation slides, Workshop Video, and Workshop Communication<br /> <br />Srinivas Murthy: Data sharing during the COVID-19 pandemic presentation and accompanying PowerPoint slides.<br /> <br />Maggie Woo Kinshella: Our experience with Open Data for the 'Integrating a neonatal healthcare package for Malawi' project presentation and accompanying Powerpoint slides.<br /> <br />This workshop was developed as part of Dr. Ansermino's Data Champions Pilot Project supported by the <a href = "https://alliancecan.ca/en">Digital Research Alliance of Canada</a>.<br />
UBC Dataverse Translation missing: fr.blacklight.search.logo
Borealis
Huxford, Charly; Nguyen, Vuong; Trawin, Jessica; Johnson, Teresa; Kissoon, Niranjan; Wiens, Matthew; Ogilvie, Gina; Murthy, Srinivas; Dhugga, Gurm; Kinshella, Maggie Woo; Ansermino, J Mark 2023-04-18 <strong>Objective(s):</strong> Momentum for open access to research is growing. Funding agencies and publishers are increasingly requiring researchers make their data and research outputs open and publicly available. However, this introduces many challenges, especially when managing confidential clinical data.<br /> <br />The aim of this 1 hr virtual workshop is to provide participants with knowledge about what synthetic data is, methods to create synthetic data, and the 2023 Pediatric Sepsis Data Challenge.<br /> <br />Workshop Agenda:<br /> <br />1. Introduction - Speaker: Mark Ansermino, Director, Centre for International Child Health <br /> <br />2. "Leveraging Synthetic Data for an International Data Challenge" - Speaker: Charly Huxford, Research Assistant, Centre for International Child Health <br /> <br />3. "Methods in Synthetic Data Generation." - Speaker: Vuong Nguyen, Biostatistician, Centre for International Child Health and The HIPpy Lab <br /> <br />This workshop draws on work supported by the Digital Research Alliance of Canada.<br /> <br /><strong>Data Description:</strong> Presentation slides, Workshop Video, and Workshop Communication<br /> <br />Charly Huxford: Leveraging Synthetic Data for an International Data Challenge presentation and accompanying PowerPoint slides.<br /> <br />Vuong Nguyen: Methods in Synthetic Data Generation presentation and accompanying Powerpoint slides.<br /> <br />This workshop was developed as part of Dr. Ansermino's Data Champions Pilot Project supported by the <a href = "https://alliancecan.ca/en">Digital Research Alliance of Canada</a>.<br /> <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab."
UBC Dataverse Translation missing: fr.blacklight.search.logo
Borealis
Barsky, Eugene; Schichter, Brittney; Trawin, Jessica; Johnson, Teresa; Kissoon, Niranjan; Wiens, Matthew; Ogilvie, Gina; Murthy, Srinivas; Dhugga, Gurm; Kinshella, Maggie Woo; Ansermino, J Mark 2023-03-10 <strong>Objective(s):</strong> Momentum for open access to research is growing. Funding agencies and publishers are increasingly requiring researchers make their data and research outputs open and publicly available. However, this introduces many challenges, especially when managing potentially sensitive clinical data.<br /> <br />The aim of this 1 hr virtual workshop is to provide participants with foundational knowledge that supports planning for open data in future research projects.<br /> <br />Specifically, participants will:<br /> 1. Gain an understanding of the new Tri-Agency Research Data Management policy and the analogous progress of the University of British Columbia's (UBC) Research Data Management (RDM) strategy and how they can be applied.<br /> <br />2. Gain an understanding of the ethical, privacy, and legal considerations of sharing data.<br /> <br />3. Learn practical skills for incorporating open data language into REB applications and consent form.<br /> <br />Workshop Agenda:<br /> <br />1. "Becoming familiar with the new Tri-Agency Research Data Management Policy" - Speaker: Eugene Barsky, Research Data Librarian, UBC Library<br /> <br />2. "Ethics and Practical Considerations of Open Data Sharing." - Speaker: Brittney Schichter, Director, Research Integration & Innovation, Provincial Health Service Authority (PHSA) Research and Academic Services<br /> <br />This workshop draws on work supported by the Digital Research Alliance of Canada.<br /> <br /><strong>Data Description:</strong> Presentation slides, Workshop Video, and Workshop Communication<br /> <br />Eugene Barksy: Tri-Agency Research Data Management Policy presentation and accompanying PowerPoint slides.<br /> <br />Brittney Schichter: Ethics and Practical Considerations of Open Data Sharing presentation and accompanying Powerpoint slides.<br /> <br />This workshop was developed as part of Dr. Ansermino's Data Champions Pilot Project supported by the <a href = "https://alliancecan.ca/en">Digital Research Alliance of Canada</a>.<br /> <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab."

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