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Smart Discharges Uganda Caregiver Counselling Video Series - English Version
Borealis
Komugisha, Clare; Trawin, Jessica; Mwaka, Savio; Kajumba Nsangi, Damalie; Kanyali, Charlene; DeKorne, Micah; Kenya-Mugisha, Nathan; Wiens, Matthew — 2022-06-02 <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab." <strong>Objective(s):</strong> Smart Discharges is a digital health program that uses individual-level risk prediction and intervention to increase effective health seeking behavior, improve health outcomes, and reduce mortality during the post-discharge period. Health workers aim to mitigate risk by educating caregivers on post-discharge care practices and by scheduling follow-up visits for at-risk children in their communities. <br /> <br /><strong>Data Description:</strong> This dataset features a 7-part caregiver counselling video series tailored to the Ugandan context. It includes an introductory video and seven videos focusing on essential post-discharge care practices: <br /> <br />1) Hygiene<br /> 2) Nutrition<br /> 3) Breastfeeding<br /> 4) Care Seeking<br /> 5) Mosquito Net Use<br /> 6) Medications<br /> 7) Immunizations<br /> <br />Videos are available in English and local Ugandan languages of Acholi, Luganda, Lusoga, and Runyankole. This dataset contains the <strong> English</strong> version. <br /> <br /><strong>Limitations:</strong> Videos were designed for the Ugandan context and may not be generalizable to other settings. <br /> <br /><strong>Abbreviations:</strong> Village Health Teams (VHT) (i.e. local term for Community Health Worker (CHW))<br /> <br /><strong>Ethics Declaration:</strong> NA<br /> <br /><strong>Funding Source(s):</strong> BC Children's Hospital Foundation; Grand Challenges Canada; Mining4Life; Thrasher Research Fund;<br />
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Smart Discharges Uganda Caregiver Counselling Video Series - Runyankole Version
Borealis
Komugisha, Clare; Trawin, Jessica; Mwaka, Savio; Kajumba Nsangi, Damalie; Kanyali, Charlene; DeKorne, Micah; Kenya-Mugisha, Nathan; Wiens, Matthew — 2022-06-02 <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab." <strong>Objective(s):</strong> Smart Discharges is a digital health program that uses individual-level risk prediction and intervention to increase effective health seeking behavior, improve health outcomes, and reduce mortality during the post-discharge period. Health workers aim to mitigate risk by educating caregivers on post-discharge care practices and by scheduling follow-up visits for at-risk children in their communities. <br /> <br /><strong>Data Description:</strong> This dataset features a 7-part caregiver counselling video series tailored to the Ugandan context. It includes an introductory video and seven videos focusing on essential post-discharge care practices: <br /> <br />1) Hygiene<br /> 2) Nutrition<br /> 3) Breastfeeding<br /> 4) Care Seeking<br /> 5) Mosquito Net Use<br /> 6) Medications<br /> 7) Immunizations<br /> <br />Videos are available in English and local Ugandan languages of Acholi, Luganda, Lusoga, and Runyankole. This dataset contains the <strong> Runyankole</strong> version. <br /> <br /><strong>Limitations:</strong> Videos were designed for the Ugandan context and may not be generalizable to other settings. <br /> <br /><strong>Abbreviations:</strong> Village Health Teams (VHT) (i.e. local term for Community Health Worker (CHW))<br /> <br /><strong>Ethics Declaration:</strong> NA<br /> <br /><strong>Funding Source(s):</strong> BC Children's Hospital Foundation; Grand Challenges Canada; Mining4Life; Thrasher Research Fund;
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Smart Discharges Uganda Caregiver Counselling Video Series - Luganda Version
Borealis
Komugisha, Clare; Trawin, Jessica; Mwaka, Savio; Kajumba Nsangi, Damalie; Kanyali, Charlene; DeKorne, Micah; Kenya-Mugisha, Nathan; Wiens, Matthew — 2022-06-02 <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab." <strong>Objective(s):</strong> Smart Discharges is a digital health program that uses individual-level risk prediction and intervention to increase effective health seeking behavior, improve health outcomes, and reduce mortality during the post-discharge period. Health workers aim to mitigate risk by educating caregivers on post-discharge care practices and by scheduling follow-up visits for at-risk children in their communities. <br /> <br /><strong>Data Description:</strong> This dataset features a 7-part caregiver counselling video series tailored to the Ugandan context. It includes an introductory video and seven videos focusing on essential post-discharge care practices: <br /> <br />1) Hygiene<br /> 2) Nutrition<br /> 3) Breastfeeding<br /> 4) Care Seeking<br /> 5) Mosquito Net Use<br /> 6) Medications<br /> 7) Immunizations<br /> <br />Videos are available in English and local Ugandan languages of Acholi, Luganda, Lusoga, and Runyankole. This dataset contains the <strong> Luganda</strong> version. <br /> <br /><strong>Limitations:</strong> Videos were designed for the Ugandan context and may not be generalizable to other settings. <br /> <br /><strong>Abbreviations:</strong> Village Health Teams (VHT) (i.e. local term for Community Health Worker (CHW))<br /> <br /><strong>Ethics Declaration:</strong> NA<br /> <br /><strong>Funding Source(s):</strong> BC Children's Hospital Foundation; Grand Challenges Canada; Mining4Life; Thrasher Research Fund;
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Smart Discharges Uganda Caregiver Counselling Video Series - Lusoga Version
Borealis
Komugisha, Clare; Trawin, Jessica; Mwaka, Savio; Kajumba Nsangi, Damalie; Kanyali, Charlene; DeKorne, Micah; Kenya-Mugisha, Nathan; Wiens, Matthew — 2022-06-02 <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab." <strong>Objective(s):</strong> Smart Discharges is a digital health program that uses individual-level risk prediction and intervention to increase effective health seeking behavior, improve health outcomes, and reduce mortality during the post-discharge period. Health workers aim to mitigate risk by educating caregivers on post-discharge care practices and by scheduling follow-up visits for at-risk children in their communities. <br /> <br /><strong>Data Description:</strong> This dataset features a 7-part caregiver counselling video series tailored to the Ugandan context. It includes an introductory video and seven videos focusing on essential post-discharge care practices: <br /> <br />1) Hygiene<br /> 2) Nutrition<br /> 3) Breastfeeding<br /> 4) Care Seeking<br /> 5) Mosquito Net Use<br /> 6) Medications<br /> 7) Immunizations<br /> <br />Videos are available in English and local Ugandan languages of Acholi, Luganda, Lusoga, and Runyankole. This dataset contains the <strong> Lusoga</strong> version. <br /> <br /><strong>Limitations:</strong> Videos were designed for the Ugandan context and may not be generalizable to other settings. <br /> <br /><strong>Abbreviations:</strong> Village Health Teams (VHT) (i.e. local term for Community Health Worker (CHW))<br /> <br /><strong>Ethics Declaration:</strong> NA<br /> <br /><strong>Funding Source(s):</strong> BC Children's Hospital Foundation; Grand Challenges Canada; Mining4Life; Thrasher Research Fund;
UBC Dataverse Translation missing: fr.blacklight.search.logo
Smart Discharges Uganda Caregiver Counselling Video Series - Acholi Version
Borealis
Komugisha, Clare; Trawin, Jessica; Mwaka, Savio; Kajumba Nsangi, Damalie; Kanyali, Charlene; DeKorne, Micah; Kenya-Mugisha, Nathan; Wiens, Matthew — 2022-06-02 <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab." <strong>Objective(s):</strong> Smart Discharges is a digital health program that uses individual-level risk prediction and intervention to increase effective health seeking behavior, improve health outcomes, and reduce mortality during the post-discharge period. Health workers aim to mitigate risk by educating caregivers on post-discharge care practices and by scheduling follow-up visits for at-risk children in their communities. <br /> <br /><strong>Data Description:</strong> This dataset features a 7-part caregiver counselling video series tailored to the Ugandan context. It includes an introductory video and seven videos focusing on essential post-discharge care practices: <br /> <br />1) Hygiene<br /> 2) Nutrition<br /> 3) Breastfeeding<br /> 4) Care Seeking<br /> 5) Mosquito Net Use<br /> 6) Medications<br /> 7) Immunizations<br /> <br />Videos are available in English and local Ugandan languages of Acholi, Luganda, Lusoga, and Runyankole. This dataset contains the <strong> Acholi</strong> version. <br /> <br /><strong>Limitations:</strong> Videos were designed for the Ugandan context and may not be generalizable to other settings. <br /> <br /><strong>Abbreviations:</strong> Village Health Teams (VHT) (i.e. local term for Community Health Worker (CHW))<br /> <br /><strong>Ethics Declaration:</strong> NA<br /> <br /><strong>Funding Source(s):</strong> BC Children's Hospital Foundation; Grand Challenges Canada; Mining4Life; Thrasher Research Fund;
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Transitions from hospital to home: A mixed methods study to evaluate pediatric discharges in Uganda
Borealis
Kabajaasi, Olive; Trawin, Jessica; Derksen, Brooklyn; Komugisha, Clare; Mwaka, Savio; Waiswa, Peter; Nsungwa-Sabiiti, Jesca; Ansermino, J Mark; Kissoon, Niranjan; Duby, Jessica; Kenya-Mugisha, Nathan; Wiens, Matthew O — 2023-06-29 <br /><strong>Background:</strong> The World Health Organization (WHO) Integrated Management of Childhood Illness (IMCI) guidelines recognize the importance of discharge planning to ensure continuation of care at home and appropriate follow-up. However, insufficient attention has been paid to post discharge planning in many hospitals contributing to poor implementation. To understand the reasons for suboptimal discharge, we evaluated the pediatric discharge process from hospital admission through the transition to care within the community in Ugandan hospitals. <br /> <br /><strong>Methods:</strong> This mixed methods prospective study enrolled 92 study participants in three phases: patient journey mapping for 32 admitted children under-5 years of age with suspected or proven infection, discharge process mapping with 24 pediatric healthcare workers, and focus group discussions (FDGs) with 36 primary caregivers and fathers of discharged children. Data were descriptively and thematically analyzed.<br /> <br /><strong>Findings:</strong> The typical discharge process is often not centered around the needs of the child and family. Discharge planning often does not begin until immediately prior to discharge and generally does not include caregiver input. Discharge education and counselling are generally limited, rarely involves the father, and does not focus significantly on post-discharge care or follow-up. Delays in the discharge process itself occur at multiple points, including while awaiting a physical discharge order and then following a discharge order, mainly with billing or transportation issues.<br /> <br /><strong>Data Collection Methods:</strong> <strong>Journey mapping</strong> data were collected using the REDCap Mobile App and were then uploaded to a REDCap database hosted at the BC Children’s Hospital Research Institute (Vancouver, Canada). Study nurses conducted direct observation during in-hospital care as well as caregiver interviews at admission and 72 hours post-discharge using a series of checklists and close-ended questions with some open-entry questions to identify process outcomes as well as barriers and facilitators to the patient’s journey. Healthcare provider working groups engaged in two brainstorming sessions per hospital to develop a <strong>process map</strong> of each hospital’s current pediatric discharge process and to identify inefficiencies to care and potential solutions. Using paper, pens, and sticky notes, group members jointly mapped out the discharge pathways of their respective facilities and jointly identified all stages of the process. Data were captured using worksheets and audio recordings. A trained research assistant facilitated <strong>FGD</strong> two weeks after direct observation concluded with patient caregivers. Participants were asked to respond to open-ended questions that focused on their experiences regarding their child’s admission, hospital stay, discharge and post-discharge. All FGDs were digitally recorded, transcribed verbatim and translated into English by external individuals fluent in the languages. Healthcare provider working groups engaged in two brainstorming sessions per hospital to develop a map of each hospital’s current pediatric discharge process and to identify inefficiencies to care and potential solutions. <br /> <br /><strong>Ethics Declaration:</strong> Ethical approvals were obtained from Makerere University (HDREC #850), Uganda National Council for Science and Technology (#HS929ES) and the University of British Columbia (UBC C&W REB # H20-02519).<br /> <br /><strong>Study Protocol & Supplementary Materials:</strong> <br /> <a href = "https://doi.org/10.5683/SP3/IDLGNN">Smart Discharges Transition to Scale</a><br /> <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator at <a href = mailto:sepsiscolab@bccchr.ca>sepsiscolab@bcchr.ca</a> or visit our <a href = "https://wfpiccs.org/pediatric-sepsis-colab/">website</a>.
UBC Dataverse Translation missing: fr.blacklight.search.logo
Smart Discharges Transition to Scale
Borealis
Wiens, Matthew; Trawin, Jessica; Komugisha, Clare; Mwaka, Savio; Nsungwa, Jesca; Kissoon, Niranjan; Ansermino, J Mark; Kenya-Mugisha, Nathan — 2023-06-15 <br /><strong>Dataset Description:</strong> This dataset contains materials from a the Smart Discharges Transition to Scale parent study within the <a href = "https://bcchr.ca/smart-discharges">Smart Discharges</a> program of research. Materials include the parent study protocol and associated documents. See the Metadata section below for links to related publications and datasets.<br /> <br /><strong>Background:</strong> In Uganda, approximately 5% of children admitted with severe infections die after they have been discharged from the hospital, mostly at home. Most of these deaths are preventable as they are largely due to the way that discharges are done and how follow-ups are planned. Health workers and caregivers are often unaware of this period of vulnerability and are poorly equipped to identify and handle this critical situation. Our previous work focused on developing and evaluating models and technology to predict, before discharge, an individual child’s risk of recurrent illness, as well as to provide additional post-discharge support to at-risk children. The goal of this project is to determine how best to scale the Smart Discharges Program through a four-phased approach, each corresponding to a specific objective. <strong>Phase I :</strong> aims to understand the reasons for suboptimal discharge by evaluating the pediatric discharge process from hospital admission through the transition to care within the community. <strong>Phase II :</strong> aims to assess pediatric discharge policies and facility readiness for change in a nationally representative sample of health facilities in Uganda. <strong>Phase III :</strong> aims to evaluate the effects of the Smart Discharges Health Worker Training Program on discharge care practices and procedures. <strong>Phase IV :</strong> aims to complete the facility-based linkage to care through the use of a community-based follow-up system. <br /> <br /><strong>Methods:</strong> Each of the four project phases utilizes different research methodologies. <strong>Phase I </strong> is a mixed methods prospective study utilizing patient journey mapping, discharge process mapping, and focus group discussions at 3 Ugandan Hospitals. <strong>Phase II </strong> is a cross-sectional, survey-based study conducted at 36 health facilities providing in-patient pediatric care in Uganda. <strong>Phase III and IV :</strong> (implemented together) is a quality improvement intervention at 16 health facilities in Uganda. <br /> <br /><strong>Discussion:</strong> Ultimately this work is focused on ensuring widespread adoption of Smart Discharges practices throughout Uganda by building capacity that ensures sustainability. Exploring and characterizing the existing pediatric discharge process, including human and health system factors that impact this process, will allow us to operationalize the Smart Discharges innovation into an effective health-systems approach to this neglected issue.<br /> <br /><strong>Ethics Declaration:</strong> Ethics approvals have been obtained from the Makerere University School of Public Health (MakSPH) Institutional Review Board (PI: 850; PII: 851; PIII/IV: 836), the Uganda National Council of Science and Technology (UNCST) in Uganda (PI: HS929ES; PII: HS928ES; PIII/IV: HS926ES) and the University of British Columbia in Canada (PI-IV: H20-02519). <br /> <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab Coordinator at <a href = mailto:sepsiscolab@bccchr.ca>sepsiscolab@bcchr.ca</a> or visit our <a href = "https://wfpiccs.org/pediatric-sepsis-colab/">website</a>.
UBC Dataverse Translation missing: fr.blacklight.search.logo
Geographical validation of the Smart Triage Model by age group
Borealis
Zhang, Cherri; Wiens, Matthew O; Dunsmuir, Dustin; Pillay, Yashodani; Huxford, Charly; Kimutai, David; Tenywa, Emmanuel; Ouma, Mary; Kigo, Joyce; Kamau, Stephen; Chege, Mary; Kenya-Mugisha, Nathan; Mwaka, Savio; Dumont, Guy A; Kisson, Niranjan; Akech, Samuel; Ansermino, J Mark — 2024-06-12 <br /><strong>Background:</strong> Age is an important risk factor among critically ill children with neonates being the most vulnerable. Clinical prediction models need to account for age differences and must be externally validated and updated, if necessary, to enhance reliability, reproducibility, and generalizability. We externally validated the Smart Triage model using a combined prospective baseline cohort from three hospitals in Uganda and two in Kenya using admission, mortality, and readmission. <br/> <br /><strong>Methods:</strong> We evaluated model discrimination using area under the receiver-operator curve (AUROC) and visualized calibration plots. In addition, we performed subsetting analysis based on age groups (< 30 days, ≤ 2 months, ≤ 6 months, and < 5 years). We revised the model for neonates (< 1 month) by re-estimating the intercept and coefficients and selected new thresholds to maximize sensitivity and specificity. 11595 participants under the age of five (under-5) were included in the analysis. <br/> <br /><strong>Results:</strong> The proportion with an outcome ranged from 8.9% in all children under-5 (including neonates) to 26% in the neonatal subset alone. The model achieved good discrimination for children under-5 with AUROC of 0.81 (95% CI: 0.79-0.82) but poor discrimination for neonates with AUROC of 0.62 (95% CI: 0.55-0.70). Sensitivity at the low-risk thresholds (CI) were 0.85 (0.83-0.87) and 0.68 (0.58-0.76) for children under-5 and neonates, respectively. Specificity at the high-risk thresholds were 0.93 (0.93-0.94) and 0.96 (0.94-0.98) for children under-5 and neonates, respectively. After model revision for neonates, we achieved an AUROC of 0.83 (0.79-0.87) with 13% and 41% as the low- and high-risk thresholds, respectively. <br/> <br /><strong>Discussion:</strong> The Smart Triage model showed good discrimination for children under-5. However, a revised model is recommended for neonates due to their uniqueness in disease susceptibly, host response, and underlying physiological reserve. External validation of the neonatal model and additional external validation of the under-5 model in different contexts is required. <br/> <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator at <a href = mailto:sepsiscolab@bccchr.ca>sepsiscolab@bcchr.ca</a> or visit our <a href = "https://wfpiccs.org/pediatric-sepsis-colab/">website</a>.
UBC Dataverse Translation missing: fr.blacklight.search.logo
Smart Discharges for vulnerable refugee children: a cohort study to validate prognostic algorithms for post-discharge readmission and mortality among children living in refugee settings
Borealis
Wiens, Matthew O; Toliva,Opar Bernard; Nsungwa-Sabiiti, Jesca; Mwaka, Savio; Komugisha, Clare; Nyalwal, Beatrice Lydiah Adhiambo; Bone, Jeffrey; Nguyen, Vuong; Kenya-Mugisha, Nathan — 2024-07-22 <br /><strong>Background:</strong> In many African countries, pediatric post-discharge mortality following in-hospital treatment for severe infectious illness is higher than in-hospital mortality (5-8%). Risk algorithms can be used to help health workers identify those most vulnerable to poor post-discharge outcomes. They can also assist health workers in providing personalized discharge counselling and recommending effective follow-up care. This can improve overall system efficiency. While this approach has shown promise among general pediatric populations, no research has addressed issues of post-discharge morbidity and mortality within the refugee context, where unique vulnerabilities exist. This study aims to validate the Smart Discharges approach to improve outcomes among children in refugee settings, and ultimately to build a generalizable and inclusive solution to improving pediatric post-discharge outcomes.<br /> <br /><strong>Methods:</strong> This study is a prospective observational cohort study that will be conducted at 3 health facilities in Lamwo District, northern Uganda between April 2023 and September 2024. We will enroll 1,500 children under 13 years of age between the three study sites of Padibe HCIV, Paluda HCIII, and Palabek Kal HCIII. The primary objective is to validate, calibrate, and refine the Smart Discharges risk-prediction algorithm in a representative cohort of refugee children. Secondary objectives include: i) to describe the epidemiology of, and risk factors for, post-discharge mortality of children in the context of refugee settings; ii) to describe the post-discharge health seeking patterns of children in the context of refugee settings; and iii) to evaluate the pediatric discharge process at 3 health facilities providing discharge care to children living in refugee settings. Following enrollment a research nurse will obtain and record clinical and demographic variables required for model validation including vital signs, oxygen saturation, anthropometric data, prior care seeking, co-morbidities and diagnoses. A rapid diagnostic test using blood, which will require a finger prick to collect < 0.5ml of blood, will be conducted to assess the patient's HIV status, malaria parasitemia, and hemoglobin (hemocue). All enrolled children will receive phone follow-up from study staff at 2-, 4- and 6 months following hospital discharge for research purposes. Verbal autopsies, often used in this context to determine cause of death, will be conducted for all children who die following discharge. All study sites will also undergo the discharge module of a 5-survey Facility Scan developed by the Pediatric Sepsis Data CoLaboratory’s (Sepsis CoLab) to support health facilities in identifying and assessing quality improvement priorities and initiatives.This will be done at both baseline (conclusion of clinical study activities) and 4 months following the completion of study activities to measure the facility readiness to implement improved discharge care, and its persistence over time.<br /> <br /><strong>Ethics Declaration:</strong> Ethical approval has been obtained from the University of British Columbia Children’s & Women’s Research Ethics Board in Canada (H23-00012) and the Makerere School of Public Health Research Ethics Board in Uganda (SPH-2023-369). <br /> <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator at <a href = mailto:sepsiscolab@bccchr.ca>sepsiscolab@bcchr.ca</a> or visit our <a href = "https://wfpiccs.org/pediatric-sepsis-colab/">website</a>.
UBC Dataverse Translation missing: fr.blacklight.search.logo
Smart Triage: Clinical Data - QI
Borealis
Kissoon, Niranjan; Kasyaba, Ronald; Kenya-Mugisha, Nathan; Ansermino, J Mark; Opar, Bernard; Dumont, Guy; Komugisha, Clare; Agaba, Collins; Mwaka, Savio; Pillay, Yashodani; Wiens, Matthew O — 2024-11-20 This data is from the Smart Triage + QI: A digital triaging platform to improve quality of care for critically ill children study. Data collected for this study occurred from December 2021 to July 2023. <br> <br/><strong>Objective(s):</strong> This is a pre-post intervention study involving pediatric patients presenting to the study hospitals in seek of medical care for an acute illness. The purpose of this project was to implement Smart Triage + QI to improve the quality of care at four health care facilities in Uganda. The primary objective of the program is to enable healthcare workers to recognize the most urgent children more rapidly and allocate existing resources more efficiently. The second objective is to use the proactive processes of QI to identify and examine opportunities for ongoing improvement to strengthen the health system. The study involved two phases: (I) Baseline Period, and (II) Intervention Period. Phase II also involved a community sub-study at 1 site to identify key messaging for an appropriate methods for disseminating educational materials for VHTs and caregivers on Smart Triage. <br> <br /><strong>Data Description:</strong> Data was collected at the time of triage by trained study nurses using a custom-built mobile application. All data entered into the mobile application was stored an encrypted database. Data was uploaded directly from the mobile device to a Research Electronic Data Capture (REDCap) database hosted at the BC Children’s Hospital Research Institute (Vancouver, Canada). Outcomes were obtained from facility records or telephone follow-up at 7-10 days and the data was collected electronically. Starting in June 2022, outcomes were also collected via automated follow-up (SMS/WhatsApp) messages at one site. Time-specific outcomes were tracked using an RFID tagging system with study personnel as backup. <br> <br /><strong>Limitations:</strong> There is missing data and some variables were not collected at all sites. <br> <br /><strong>Ethics Declaration:</strong> This study was approved by the Makerere University Higher Degrees research and Ethics Committee (SPH-2021-41), the Uganda National Institute of Science and Technology (HS 1745ES). <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator at <a href = mailto:sepsiscolab@bccchr.ca>sepsiscolab@bcchr.ca</a> or visit our <a href = "https://wfpiccs.org/pediatric-sepsis-colab/">website</a>.

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